Devastating News

It is with deep, deep sadness that I have to tell you that during the (NHS) scan this morning, our baby was found to not have developed a skull (this condition is called acrania - an extreme form of spina bifida). Everything else is there and working perfectly, the brain is fully formed, and it has all its organs, but the top half of the skull is simply not there, and never will be, so there is no hope for it. It is a fatal condition, sadly. Poor little thing. I've already taken a pill this afternoon to induce the birth, so I hope it will be all over within a few hours. Unfortunately I have to go to the labour ward, but we can cope as we've sobbed for most of the day and have now accepted this hideous sadness.

But we're not giving up. I know many girls have had treatment so many times, so to work first time is a bit lucky... And we have been offered a post mortem which we gladly accepted so they can tell us if there are any other abnormalities. I'm very sad and upset for my baby and for my husband. But we will survive and continue on strong afterwards.

13 comments:

Hekateris said...

Oh, no! I am so, so sorry.

DD said...

Our thoughts are with you and your husband as you work through this sad, sad time. So very, very sorry.

Sue said...

I'm just heartbroken to hear this devastating news. You and your husband are in my thoughts.

Zengirl said...

Thank you for your kind words and sympathy. We are just devastated. :-(

Dr. Grumbles said...

Oh no. I am so sorry.

serenity said...

Here from Birch and Maple... My thoughts are with you and your husband. Much love to you both. I am so very sorry.

Cibele said...

I am here from Sara's blog. I am so so sorry. I am heartbroken for you

Aunt Becky said...

I was sent by Doc Grumbles, and I wanted to express how very sorry I am. I know that words will never truly express how so sorry that I am.

Alison said...

Dr. Grumbles sent me and I am so sorry. Simply devastating. {{HUGS}}

JJ said...

I am so, so sorry

Rachel said...

Came from Doc Grumbles.

I'm so sorry!

Sara said...

So, so sorry for your loss.

Zengirl said...

Thank you all.
Your comments help.
I know you feel my pain.
I cry often.
But I will get strong again.
It was just such a shock...